Scott & Sunny

Scott & Sunny

Monday, August 27, 2007

Today is turning out to be horrible. No change in Scott, just constant exhaustion to the point where he wont even talk, not even a "yes" or "no". He has been running low grade fever again all day, it started to spike an hour ago but then eased a little.
Without getting into all the details I have come to realise that everyone I talk to gives me different answers to my questions regarding medication, fever, relapse etc. I am not becoming crazy or paranoid, I am just very aware.
The doctors and nurses are pretty much stumped as to what is going on with Scott and I cannot just sit here and watch him slip further and further into his abyss. I am not a doctor but I know that some of the symptoms Scott is displaying tie in with relapse, even some of his bloodwork is showing signs that this may be the case. So I have asked that Dr Tebbi do a bone marrow aspiration tomorrow and he agreed, I know that he would not have agreed unless he too thought it were possible. He still says that this is not likely and it goes without saying that he is the specialist and we hope he is right, having said that I want as many avenues explored as possible.
As each day passes it becomes less likely that this is viral, but something is going on and time is as always, of the essence.
It is heartbreaking to watch and not be able to do anything to make it all better. It is frustrating and distressing to see the doctors start to become uneasy.
I just want to see Scott laugh and smile, I want my baby back.

5 comments:

Dawn said...

Oh Stephanie, I’m so sorry that you’re all going through such a tough time right now.

We’ve been away for a few weeks and I’m only just catching up on all your news. It was sounding so positive before we went away and suddenly you’re in this position. Please know that we are all thinking of you over here across the pond.

Harry is going into hospital for a small eye operation on Wednesday morning and I’m worried enough about that. Goodness knows how you are feeling. Any news about the Glandular Fever results yet? Jack had that last year and was running a high temp, hardly ate a thing and slept for 10 straight days and nights. Don’t think I’ve ever seen him so ill and it took about 4 months to clear his system. He was 13 at the time and bigger and stronger than Scott. In one sense I hope Scott doesn’t have to contend with it but maybe it’s better than some of the alternatives. Anyway I hope you get some good news soon.

The kids all send their love and now we’ve opened a Google account we’ll stay in touch.

Take care of each other and tell David he sounds a lovely man the way he’s looking after you all. (Good old English word that, but it seems to describe him just right)!!

Bye for now.
Auntie Dawn.

Laura said...

Dear Stephanie & David,
I am so sorry you are faced with more scary scenarios and uncertainty. I just can't imagine what you are going through and it shocks me you have had to do it for this long with no answers. I wish I could do something to make it all better - my words can't express what I am feeling. But please know I am thinking of you all so much and hoping each time I check this that there is some good news for you all. Please take care, and know you are close in my thoughts and heart.
Sending my love, Angel Laura

Sandie said...

So I went and did it. I lit candles for Scott. At this point, I'd swing a damn salami over my head and chant in tongues if I thought it would help.

I cannot fathom your pain or fear. I can only keep you all in my heart and in my thoughts and wish for a good turn of events.

Lots of love to you all.
S.

christine said...

Oh how much I want to see Scott laugh and smile as well. And you Stephanie and Derry and David. Will be thinking of you all day today and hoping the BMA test goes well and has the right result. Lots of prayers are going your way.
love and lots of hugs
Mum/nana

Sandie said...

We are thinking of you also and wishing for a smooth test with good results.

Lots of love to all of you.
xoxoxox
S.