Derry and I just back home from a long day at the hospital. The tube experience was, well, awful. All the contrast did get put down the tube for the scan. Probably about 1/3 of it came back up in two vomiting rounds. And the tube comes partially out then as well. But it got back down both times, and was actually taken out just before he was taken down for the CT.
Scott did very well all things considered. I told Stephanie and the nurses at least we saw some anger in him. We'll take any emotion compared to the complete listless nature of the past week.
So he was back at room and starting the antifungal treatment for this evening. He's had potassium, the feeding tube through the nose, about a 20 ounces of contrast for his CT, a round of vanco and benadryl.
All he has left tonight is GCSF shots (something he's never had, which spike the white blood count), a unit of blood, a change of the access needle in his port (since it's been in a week tonight) and then nutrition via IV.
This is painful to watch. We can only have nightmares about how it must be for Scott.
Scott & Sunny
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I am so sorry you are all having to go through this, most especially Scott. He is a fighter in a small package. Tell him we are with him every moment.
We love you.
Carolyn and Ken
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