Scott is doing very well today, much more focused and even his wicked sense of humour is coming back. He had a visit from physical and occupational therapy and they seemed quite pleased with his progress and will be working further with him in the weeks to come. When they arrived I started to help Scott get out of bed and put some socks on but this didnt go down well so I skulked off and made coffee. They were nice girls and Scott seemed at ease with them. They also gave us suggestions on ways to improve his walking, coordination etc. He will have to do some exercises at home, use his stationary bike and get into the pool as much as possible. But on the whole everything looks pretty good. He will also see a speech therapist soon and see what, if anything, needs to be done to help with this.
It has only been a week since the clot was found and I think it is fair to say that Scott has bounced back better than any of us could have imagined. Those days last week when Scott's mind seemed to have left the building were without a doubt the scariest days of my life and I know that David and Derry felt the same. I couldnt even begin to describe our terror and the same can be said for how relieved and happy we now feel to have our little Scotty back.
I am sure we still have some way to go but as far as I can tell with a little more time and with therapy he will be good as new before too much longer.
More good news ..... Scott has just had his very last Doxorubicon!! I did a little happy dance around the room, he called me a 'moron', all good stuff. His Vincristine is going in now followed by a shot of steroids. However his port is gushing blood and wont stop due to the blood thinners. His chest is all wrapped up and he looks like he's suffered a shrapnel wound. I was told it will probably keep bleeding until he is de-accessed, and that, we hope, will be tomorrow. Yup they may let us go tomorrow. He is still very reluctant to eat but has had a few Pringles and a Popsicle so we are making progress.
I have lots of thank you's but my mind is a bit mushy right now so I apologise if I forget someone.
Little Sydney is a 15 month old girl with tumours on both of her kidneys, she is undergoing chemo and will face surgery soon. Yesterday she sent Scott a beautiful decoration of fruit, I guess she was trying to get Scott to eat. A very unexpected surprise and very much appreciated and enjoyed. Thank you Sydney.
Thank you to Katie and MaryLynn and Rosie for coming to visit and for trying to cheer me up. Im sorry that this was such a mammoth task for you all. I havent been good company of late thats for sure.
Thank you to Carolyn, Grandmomma and Papa and Sandie for the wrestling dvds. Thank you Mum for the beautiful flowers. Thank you to our chemo angels for their constant support and to Laura for buying Scott a star. We thought that to be such a touching and thoughtful gift although the star will probably be named after an ice hockey player. LOL. Thank you to Sarah for the basket of hockey cookies. Thank you to Sandy from the Childrens Dream Fund for something I cannot tell you about right no in case Scott reads this. Thank you to Susan and Taylor, without whom I would have starved to death and for being there for us constantly.
Thank you to Dr Tebbi and his amazing crew of doctors and nurses who have suffered my worrying and nagging and constant questions. And thank you to Dawn, the manager of this ward, for her kindness and for understanding.
I had to take a break from writing this but am back now. Scott has had a lot of bleeding from his port which would not clot due to the thinners, it was looking very bad and freaked him out a bit. He is all cleaned up now and a special powder has been put on it which should aid the clotting, I certainly hope so, it wasnt pretty.
Okay, well thats it for now, my fingers are tired and I'd best go and keep an eye on Scotts wound.