Tomorrow we have: doxorubicin (boo), vincristine (hiss), aspariganase (ouch), intrathecal methotrexate (requiring general anaesthetic), total brain radiation (which I dont even want to think about), 6mp (strawberry flavoured chemo) and ODT prednisone (steroids, and lots of them).
Scott had a bit of a breakdown earlier, the anaesthetic scares him, and he's also very nervous about starting radiation and now that we are starting to find routine he knows that 2 or 3 days from now the pains will start.
My poor old mum is going to face a baptism of fire tomorrow, pediatric oncology can be a very depressing and heartbreaking place. The sad thing is, after a short while you become part of it, the horror becomes normal and no longer shocking. You need to give yourself a bit of a shake now and then and remind yourself that whilst cancer may be natural it is not normal in a child. The odds of Scott getting t-cell are about 1 in a million I believe. People say you find your "new normal", well I'll be damned if I will ever accept this as OUR normal!
Its like a real bad trip.
Scott & Sunny
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3 comments:
Stephanie so glad that you have started sending blogs. It may help in some way. So glad your Mum has come to be with you all. I have just felt you all were there all alone. All though I know it has been best for Scott.
Please tell him that we Love him and will be with him all the way tomorrow .
Love To All
Grandmama & Papa
We will be sending Scott some extra love today. You are all with us everyday.
Especially you, sunshine.
Lots of love to you.
xoxox
S.
Hi Steph and family.
I've been following Scott's progress pretty regularly. I am amazed by the strength of all of you, and by your courage. I just wanted to let you know that we are all thinking of you over here.
With love, Zara, Tim, Ellie and Harry
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