Scott & Sunny

Scott & Sunny

Monday, November 10, 2008

My heart is hurting with worry for my little Skittles. It really stinks seeing him so ill and lying in a hospital bed stoned out of his mind. At least for now his fear and pain have been lessened but soon the magic drug they gave him (cant remember the name of it) will wear off.
Like David said we hope the cause of all his problems (chronic insomnia, body pain, mild fever, nausea, vomiting, and now seriously high blood pressure) stem from the anti-fungal drug, Noxafil. The doctor isnt so convinced though but has withdrawn it and we now watch and wait. I desperately hope for improvement (well duh - thats a stupid thing to say isnt it!) and to see my baby bounce back.
HIs blood pressure is currently 153/103 so a drug will be given soon to try and bring it down to a safer number. Obviously this is simply a band-aid, only when we find the root of the problem will we be able to mend it.
Counts were okay, anc is 3380, but that damn bilruben is WAY high again.
I hate this shit.

3 comments:

christine said...

Stephanie - what can I say - I'm worrying both with you and for you -all we can do is try to trust the doctors - and at least if Scott is knocked out his body will be resting. hugs to you all
mum/nana

Dawn said...

Thinking of you and wishing there was something I could do to help.
Hope to hear some good news soon.
With love,
Dawn.

Sandie said...

We hate this for you.
I hope there is some positive change soon.
Try to remember to get some rest.

Lots of love to you all
xoxoxo
S.