Clinic went well this morning and Scott had an anc of almost 5000 (due to the steroids) which is great but will obviously drop considerably in the coming days. I talked for a while with the doctor as it is becoming apparent that with each new round of vincristine the pain gets worse and lasts for longer. She said that they do see this with some of the children, whilst in others the pain lessens each time. She has recommended Glutamic acid which has recently been trialed by the Children's Oncology Group and has been shown to ease vincristine pain. Also recommended and prescibed was Paxil!! Scott definately needs something to ease his depression and anxiety and I was very keen to give it a go unti I read up about it. I'm already a basket case, and whilst Im sure this drug is a blessing to many, many people, I dont think I am comfortable giving him something which says in big bold letters, 'children who take this medicine may be at an increased risk of having suicidal thoughts or actions'.
On to David. He woke with a temperature of 100.4 but said he was well enough to drop us at clinic and go to work for a while. He seemed okay this afternoon, not his usual chirpy self by any means but certainly not in the zombie state he was in last night. He yelled at the TV a bit , ate pizza, played his favourite playstation game a while and all seemed hunky dory. Then about an hour ago he started shaking and shivering and saying he hurts all over. He's now in bed covered in a hundred blankets making a strange sort of wheezing sound. His temperature is 99.4 but he's definately coming down with a cold or flu or something. Grandmomma, Papa and Carolyn ... I promise you I am taking good care of him. Were he to get up and walk right now he would sound like a box of tic tacs on legs with a mild case of vitamin C poisoning.
Thanks for checking in us. Goodnight.