Sorry for no update yesterday on clinic day. We've been quite busy and Scott and Stephanie both have just felt completely horrid. Scott posted an ANC of around 2500, so the full monty of vincristine was given. Steroids started up and joint pain is ramping up tonight. That's "normal" for the first week of his 21-day cycle.
However Scott is extremely emotional right now, and only has restless sleep in spurts. He's got a high level of anxiety about treatment ending. I'm not sure if any of us know what to expect, but it is really doing on a number on him mentally. He also demanded Stephanie buzz his hair down today. He was complaining about it making him too hot and sweaty. Emotions just run all over for the poor kid right now. I can't imagine all of the things going through his head.
So Week 100 officially got a check mark put next to it on his road map of treatment. 8 more official weeks on the protocol and then......well......"follow ups". A BMA at the end. A couple of spinals at 3 and 6 months post-treatment. But no more chemo.
I want to second Stephanie's appreciation towards all the wonderful folks who have come over from PZ's website and donated to help us. She's much better at writing than I (she says I write like a robot, and most folks probably doze off before getting to the end of my ramblings), but please know the funds you wonderful folks donated ARE an incredible, unexpected help. I am humbled by your generosity towards us.
Off to see if any of us (outside of Derry, who goes to sleep in about 3.2 seconds, and sleeps like a hunk of granite) can manage some rest tonight.