Scott slept with me AGAIN last night, we had been watching a TAPS marathon and he was too scared to sleep on his own (wussy). They caught this "astral" (lol) voice on some fancy recorder saying 'help me' and that was it, Scott couldnt even go pee without an escort. Just as he was nodding off I whispered in my best ghostly voice "help me", he spun round, went all scary psycho and threatened to call Dr. Tebbi.
Thankfully this morning he was talking to me again so we trotted off to clinic. He had his blood drawn, it took 3 finger pricks and lots of squeezing to get enough blood out! His fingers are getting all calloused so every week it is becoming more of an ordeal. Then we waited and waited and waited and finally were whisked off to do the breathing treatment. Scott was a star and managed perfectly. What a relief. He was in tears before it started, so scared he would throw up, but he didnt, all went very well indeed.
Then we went back to clinic and were presented with beautiful blood results. Considering he is just past his nadir it was a real surprise to see an anc of over 1800!!!!! The bili was also down considerably to a respectable 1.6, only .3 above the high end of normal. Wonderful, wonderful, wonderful. The other elevated enzymes were down also, still high, but not a worry. Oh yeah, and his platelets had gone back up!!! I have been harping on for weeks about the dapsone causing his platelets to drop, but no-one listened. Maybe it was just coincidence, maybe Im just too damn smart for my own good.
Clinic was very busy today so we had to wait a little while for a bed for Scott to recieve his chemo but we had lots of friends there and everyone was having a relatively good day so there was a pretty happy vibe all round. Scott even got to hold baby Emily, she is 3 weeks old and just gorgeous with her bobble head and teeny weeny nose and teeny weeny fingers. We also found our today that the son of friends of ours has achieved remission again. He relapsed shortly before Christmas and the last few weeks have been horrific for him with very, very high doses of chemo and infections. But Mathew kicked cancers butt, yet again :) , and the stage is now set for him to move forward towards transplant. It is a tough road to travel but Mathew will be treated at one of the best transplant centres in the world, his baby brother is a perfect match and someday soon Mathew will get his health and his childhood back. We wish them well.
Thanks for listening.
Over and out.