Puff the magic dragon

Another Thursday and you guessed it another day at the clinic. Scott's counts were good, he had an anc over 8000 due to the steroids, platelets and hgb both within normal range and a higher than normal white blood count. This has me a little spooked but nurse Vikki told me not to worry. His biliruben is also a little high again, hopefully it will come down within the next two weeks or we will, once again, be facing the dreaded 'half dose'.

He also had Pentadamine, the breathing treatment which should protect his lungs against a particularly nasty form of pneumonia.

Here he is, looking mighty pissed off, puffing up his breathing bong ...























He is definately out of sorts today, thoroughly fed up with this whole cancer experience, moody, withdrawn, tired, aching from chemo and just mad at the world.

Sadly one of our little friends is in intensive care right now. Little Kaylie had only just finished an aggressive protocol for infant ALL when she was taken ill with a severe allergic reaction, probably Stevens-Johnsons Syndrome, and likely caused by the drug Bactrim. She may also have aspergillus, a type of fungal pneumonia which can be difficult to treat. She is a beautiful little girl and her Mom and Nana were the first people we met when Scott was diagnosed. So we spent some time with them up in intensive care, it's heartbreaking to see Kaylie on a ventilator and so ill, I know Scott found it a little scary, but still, we needed to see Kaylie and her family and Im so glad we did. Hopefully the next time we see her she'll be making big steps in the right direction. Get well soon Kaylie!

Also our good friends Susan and Taylor dropped by to see us which was wonderful. You might remember me talking about them before, Taylor was diagnosed the same day as Scott with lymphoma. Well believe me, you would never know it! She looked a picture of punky loveliness, all radiant and glowy with lots of multi-coloured hair, which matched her tartan mini skirt just perfectly. She gave Scott a Valentines 'Shining Star' dog and he could hardly make eye contact with her without blushing. SO cute! It now has pride of place on top of his playstation. Thank you Susan and Taylor. We love you to bits!

Well must go now and try to cheer Scott up a little, and please, keep Kaylie in your thoughts.

Thank you.