Scott & Sunny

Scott & Sunny

Tuesday, April 7, 2009

Today Scott took steroid pill number 1800. His last one!!!! I tried to capture the moment on camera but he growled at me so you’ll just have to take my word for it.
Scott is of course excited and relieved that this is all coming to an end but since we’re slap-bang in the midst of hell week (vincristine) and he is in constant pain, the end still seems far off. He is also worried sick that maybe this isn’t the end after all. We have seen too many children relapse or face life-threatening side effects and this is definitely something that has been on his mind lately.
I can’t lie and promise that everything is gonna be just fine. I have told Scott the facts and figures re t-cell ALL relapse so he knows that the odds of being cured are in his favor. He knows he was a “rapid early responder” and reached remission quickly and that his prednisone response was also good. He understands the difference between t and early pre-t and how he is more than likely t-cell. All positive things.
As sad as this sounds I think he is scared to give up his chemotherapy and the security it gives him. He’ll be fine though, just needs some time, a new skateboard (he was skateboarding hours before diagnosis and hasnt done it since - doctors orders!) and a long, hot, fun-filled summer.
Anyhow, as miserable as Scott is right now, today is still a happy day. And to celebrate, I give you happy things, Morton Harket :) ….
and 'cake or death?' ...

1 comment:

Staci said...

Wow, 1800 steroid pills... I can't even imagine it! Way to go Scott on finishing up those pills! We are anxiously awaiting the update that says Scott is done.

You are all thought of often! Sending hugs from Maine.
David and Staci