"Beware the Jabberwock, my son!
The jaws that bite, the claws that catch!
Beware the Jubjub bird, and shun
The frumious Bandersnatch!"
Scott & Sunny
Tuesday, December 30, 2008
Today Scott had an appointment with an Orthotist to be fitted for braces for his damaged feet. It seems that his tendons have shrunk in two places from the chemo and this is what is causing him so much pain. When he is asleep his feet fall into an unnatural, yet comfortable (for him) position and the problem is exacerbated. So, for the forseeable future he must wear these instruments of torture to bed ...
He will also be getting a wheelchair in the next few days to allow him to get out and about a little more without struggling to walk.
Scott was diagnosed with T-cell Acute Lymphoblastic Leukemia (T-cell A.L.L.) on 01/25/07. T-cell is an aggressive leukemia and Scott is considered a 'high risk' case. His white blood count at diagnosis was 89,000, he had a mediastinal mass and had also developed sudden and severe petechiae due to lack of platelets. There was no CNS involvement.
His chemotherapy treatment began on 1/26/07 and is a 108-week-long protocol of high dose chemotherapy, steroids and cranial radiation.
Scott is treated by Doctor Tebbi at St Joseph's Childrens Hospital in Tampa.