Another Thursday another shot of the good stuff for Scotty boy.
Counts were elevated due to the steroids although his monocytes were low which spooked me somewhat but our lovely nurse, Vicky, calmed me down and said all looked good.
I think as the weeks tick by I get more and more nervous. Relapse is often seen early in t-cell (median relapse time is 62 weeks as oppose to about 130 weeks with pre b-cell) but that still leaves the other 50% occurring after 62 weeks. I think I have said this before but the word ‘cured’ isn’t uttered until 10 years remission. 10 years!!!
We got home at a decent time this morning and I spent hours going through all his bloodwork since diagnosis, driving myself crazy over counts from months ago. It was shocking looking back and seeing how many 'abnormal' cells Scott has had over the last 16 months, what they could have implied and how ignorant I was. By the time David got home from work I was hyperventilating and ready for Bedlam.
That’s all for now, apart from …
1. I stopped smoking today ….. ahahahhahahaha … I want to kill someone already and its only been 4 hours!!
2. We are going to cancer camp in Maine!!
3. 13 days until The Cure!!
Scott & Sunny
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4 comments:
Wow, you're coming to Maine! That's so awesome. I have heard great things about the cancer camp and I'm sure it will be a great time for you all! Keeping you all in our thoughts and prayers! Hugs from Maine, David and Staci
So glad another thursday is over.
It is great that you all are going to Maine I know you all will enjoy it . When are you going ? It will be great for all of you.
Just hang in there with the NO smoking. I know it is not easy.
Love To All Of You
Grandmama & Papa
I'm so jealous about cancer camp in Maine. I was trying to get there too...how much fun would THAT have been?...but they wouldn't let me come without Pete. What???!!! He's in Alabama! how much more fun can one man take?
Anyways, good luck on the smoking...you're a better woman than me.
The Cure rocks, longest concert ever! Have a blast.
Keep the good stuff going, call me so we can do something this summer. Missing you!
Hugs
Anissa
www.hope4peyton.org
Hi! Stephanie~
I hope that you guys are doing well and having a great week! I hope Scott is feeling well!
Going through the journey of childhood cancer is so scary and very worrisome! I am also spent time going over Logan's old lab results and stuff like that!
One would never think this by looking at how our clinic has been hit lately with so many all relapses but it is supposedly supposed to have a low relapse rate! Vicki told me when Logan finished treatment that the majority of kids do very very well and do not relapse! I hope that gives you some comfort! :)
Congrats on quitting smoking! That is FANTASTIC!
Hugs and Best wishes!
April Molle
http://www.caringbridge.org/visit/loganthomas01
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