Thursday came again and so did another vial of chemo. Scott’s counts were not so great with the hemoglobin and platelets falling from last week. It seems that as time ticks by his anc doesn’t rise as it used to following steroids. I was told that this is probably due to the bone marrow being tired and sluggish after taking a beating for two straight years. A good response to prednisone (the steroid used for most t-cell patients) is an early indicator as to whether treatment will be successful or not. Well, hopefully now that we are nearing the end this is not such an issue anymore. Only time will tell I suppose.

Sadly clinic was very busy this afternoon. Thursday afternoons are usually very quiet, sometimes Scott is the only patient, but not today. There were no familiar faces, so Im guessing these kids were newly diagnosed. Certainly one kid was, I could tell by the look of horror on his parents faces. Another child was being admitted to the 8th floor. This is where Scott spent the night prior to his diagnosis being confirmed by a bone marrow autopsy. The nurses called it a “dirty” floor as it is where children with contagious diseases are treated. Obviously this is not the place for a child with cancer and a low immune system. I guess the rest of the hospital must have been full. It seems that pediatric cancer is everywhere and is spiraling. Maybe it is only my awareness, or my paranoia.

Thanks for checking in and thank you to all of you who take the time to leave a little feedback. I hate having to keep this blog, obviously because of its content, but also because I feel like you're all in my space. I am not a social creature by any stretch of the imagination (unlike David who runs around, tail-a-wagging and loves everyone) so spewing forth, into cyber space, little tit bits of our lives makes me most uneasy. Obviously all the really good gossip, all the smut, the tears and the arguments I never mention, and anything mildy amusing or interesting which does become chronicled for all eternity is wildy exaggerated - but that goes without saying Im sure. LOL. But anyway, enough waffle. As I was saying ... thank you for checking in and for leaving messages. Without the messages it would be a lonely place and I certainly would have stopped running my mouth off long, long ago. Ahahhaha, so now you know how to shut me up, once and for all.

My mum keeps reminding me that my almost 90 year old Nana reads this blog every Sunday. I know this is her way of saying, "you'd better damn well stop with all that bloody swearing young lady, your Nana's listening". Mind you, Nana is Navy through and through and could probably pwn me in a swearing contest any day!! Scott's teachers have started keeping up-to-date with the blog too, which makes me sweat a bit and double check my spelling and grammar. Now I see that my curly haired and freckled little cousin is also following Scott's story and all I can think about is spinning on the waltzers with him in Helensburgh in the mid-eighties singing 'Young at Heart' and looking mighty cool. Damn I miss the eighties, and feeling completely invincible. Come to think of it I was invincible, and dazzlingly spectacular, especially in my ra-ra skirt and stripey legwarmers. I am almost 40 now, with wrinkles and folds and creaks. Shit.

Gawd, I do go on dont I? I shall zip the cake hole now and get to bed. Oh and I want to see lots of messages in the morning, especially from YOU, my dear Nana. :)