I've never wrote about it on the blog, but we had a hell of a streak going (at least as it relates to a child on a leukemia protocol). The streak was we'd been over a year now without a hospital admission. That streak stopped this evening, as Scott developed a fever during the day. We think he's picked up a bug Derry has had for a couple of days. His temp got up to 101.1 and Doc Wynn ordered us in to the Hotel Tebbi (as Doc Tebbi says - "much more expensive than the Hilton and no where near as nice").
Stephanie and he are now in a PICU room, not because of Scott's condition, but because the normal kid's oncology floor is overstuffed. So overfull in fact, they have taken some parent beds out of the rooms and have 2 kids in some rooms there - something we've never seen before while in-patient.
Scott was a nervous wreck upon arriving at the hospital, and being in a different section. Especially when it came time for him to be accessed. A couple weeks back, he had a horrid nightmare about them missing his port during access, and the needle rupturing his main arteries. He said he was dreaming he was bleeding to death. So when a nurse he'd never seen came in to access him, I thought he may puke right there. He relaxed a little when she told him she actually had trained a couple of his fav nurses when they started. But not much. He was a trooper as always, and got through it and then truly relaxed a bit.
They have taken cultures from him, which won't have results for a couple days at least (if I remember right). His urine looked fine, but his bloodwork has us worried a bit. His ANC is up to 4000, and it should be near its lowest right now. He had a white blood count of 5100, which is a bit high, but could be so if he's carrying a bug of some kind.
Needless to say, we're worried sick.
We'll update further sometime tomorrow, as we get a bit more sorted.
Scott & Sunny
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7 comments:
thinking of you all. it just goes on and on doesnt it. but as you say - scott is such a trooper and a fighter - not to mention stephanie... so glad you have the best care over there. wish i could be there to support you - but this bug thing is such a worry. love to all. lorna x
Oh dear - lets hope this fever/bug gets sorted quickly so Scott and Steph can get back home - where both will be so much more relaxed - as you say you had gone quite a time with no in patient trips to hospital. Give them both all our love - mum/nana and eric
Sending love and thinking of you all. Hope the docs manage to get his fever down quickly and you can go back home together soon.
Dawn.
Sending you all lots of love. I pray this is nothing more than a dreadful bug and that it will all be over before you know it. Please tell Steph and Scott I'm thinking of them.
xoxox
S.
I am thinking of you all and praying for a short stay. I cannot believe how full they are that kids are sharing rooms. That has never happened before. Wow!! Get better soon, Scott.
Thinking of you always,
Mary Lynn
www.butterflysnrainbows.blogspot.com
Sending lots of love and prayers for clean results and a return trip home.
Love to all
Sherry
i am praying for a swift and speedy recovery from this little bug.
hang in there. all of you.
nina
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