Monday

Not too much change today overall. Today's xray showed a bit clearer than Saturday's, so that's a positive. Scott is still extremely exhausted, as he has rested very little in 5 days. He battled fever during the night again, but not quite as high as the first few nights. No cooling blanket has been used since he moved back over from ICU. A constant barrage of different medicines continue. He's having nausea because of all the drugs, yet has little in his stomach. So when he does get sick, it is a heartbreaking sight. His chest hurts, and he's still working on about 2 litres of O2. He did walk a couple of laps around the 2nd floor with us this evening, but even then had to stop a few times to make those couple of laps. His breathing is still quite rapid and shallow, and we almost let out a cheer if his heart rate gets down to 100-110. It constantly races to compensate for the lack of work his lungs are doing, plus as a result of the many antibiotics.

Doc Rosenberg, the pulmonary doc, has been quite good with Scott. He stopped by today with a few of his med students to check Scott over. He's also ok'd a new type of respiratory therapy which was started last night by a wonderful young doctor from Shands, whom had Scott actually smiling at 4 in the morning. The treatment is continuing tonight with, what Stephanie said, is a "large man which Scott seems to like". These treatments come each 4 hours round the clock. We're hoping for good results from them. Scott seems happier during this stay with male doctors, nurses and techs for some reason.

As we said already, this is going to be a slow process of recovery. The sheer amounts of drugs he's having administered would scare anyone. How do they all truly react with each other? I doubt any one person truly knows. But they are blasting him with drugs to attack any of the possible nasty fungal and bacterial pneumonias. If it ends up being a viral type, we may never know specifically which virus started all of this. That is a scary thought all on its own with Scott's situation.

If you saw him 10 days ago, you'd have never dreamed we'd have been dealing with the last 5 days. It rattles your system and reminds you to never drop your guard. It is next to impossible to explain to people what this is like for Scott. It is simply beyond belief what he has to endure on just his T-cell treatment protocal. What he's enduring right now - I simply do not have words to describe.

Dez is sacked out. I'm going. Sadly another of what is likely going to be many more nights of beeping pumps and sensors, breathing treatments, fever, nausea and lack of sleep for our little guy and Stephanie.