Scott slept with me AGAIN last night, we had been watching a TAPS marathon and he was too scared to sleep on his own (wussy). They caught this "astral" (lol) voice on some fancy recorder saying 'help me' and that was it, Scott couldnt even go pee without an escort. Just as he was nodding off I whispered in my best ghostly voice "help me", he spun round, went all scary psycho and threatened to call Dr. Tebbi.
Thankfully this morning he was talking to me again so we trotted off to clinic. He had his blood drawn, it took 3 finger pricks and lots of squeezing to get enough blood out! His fingers are getting all calloused so every week it is becoming more of an ordeal. Then we waited and waited and waited and finally were whisked off to do the breathing treatment. Scott was a star and managed perfectly. What a relief. He was in tears before it started, so scared he would throw up, but he didnt, all went very well indeed.
Then we went back to clinic and were presented with beautiful blood results. Considering he is just past his nadir it was a real surprise to see an anc of over 1800!!!!! The bili was also down considerably to a respectable 1.6, only .3 above the high end of normal. Wonderful, wonderful, wonderful. The other elevated enzymes were down also, still high, but not a worry. Oh yeah, and his platelets had gone back up!!! I have been harping on for weeks about the dapsone causing his platelets to drop, but no-one listened. Maybe it was just coincidence, maybe Im just too damn smart for my own good.
Clinic was very busy today so we had to wait a little while for a bed for Scott to recieve his chemo but we had lots of friends there and everyone was having a relatively good day so there was a pretty happy vibe all round. Scott even got to hold baby Emily, she is 3 weeks old and just gorgeous with her bobble head and teeny weeny nose and teeny weeny fingers. We also found our today that the son of friends of ours has achieved remission again. He relapsed shortly before Christmas and the last few weeks have been horrific for him with very, very high doses of chemo and infections. But Mathew kicked cancers butt, yet again :) , and the stage is now set for him to move forward towards transplant. It is a tough road to travel but Mathew will be treated at one of the best transplant centres in the world, his baby brother is a perfect match and someday soon Mathew will get his health and his childhood back. We wish them well.
Thanks for listening.
Over and out.
Scott & Sunny
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9 comments:
I suppose it makes me a bit of a BGB that I get teary with joy when I can "hear" happiness in your voice.
You tell Scott I'll get his revenge on you when we go visit the bears. I'm a master at scaring the pants off of people.
I so happy you had a good day.
Lots of love to you all.
xoxoxox
Over and out. : )
Yeah - brass knobs indeed! Great results, on the counts and the breathing treatment. Well done Scott, I'm so glad it wasn't as bad as you thought it would be. Each time you have to go through a new proceedure like that you just show us all how brave you really are. Even if it doesn't feel like you're being very brave at the time!!
Hope you all have a great weekend and the happy vibes continue.
We've got a busy sporting weekend ahead with the kids but it's just so damm grey and miserable over here. Typical January weather. It's peeing down with rain and very windy. Try and send just a bit of Forida sunshine over here by tomorrow - PLEEEASE! It doesn't help that your Mum & Eric are off again to Tenerife for a couple of weeks. It's OK this early retirement lark isn't it?!!
Anyway, enough ranting. Over and out. :)
hey steph - sending you a tin of brasso to keep things happy and shiny..
great news - tell scott im very proud that he didnt puke with the breathing treatment, looks like 2008 must be a lot better than last year. keep being mildly paranoid and keeping those docs on their toes. lol, xxx
We are so glad to hear that Scott's numbers were all much better yesterday. Tell him great job on the breathing treatment! What a relief that he didn't get sick. :0)
Have a great weekend. Hugs from Maine
Wonderful news!! Glad to hear that Scott's numbers are up and he tolerated the treatment well.
Still sending all my good vibes and thoughts your way.
: )
nina
Wow, tell Skittles I'm so proud of him! Way to go on the breathing treatment and it sounds like there was lots of good news to be happy with today - that's fantastic! I'm thinking of you all, wishing you a wonderful Friday, and a weekend ahead filled with many more happy moments. :) Sending Smiles, Angel Laura
OK, just quickly to say the grey, miserable week has gone. The rain has stopped, the sun's out and we've even got clear blue skies. Whatever you did, it worked! Thanks. Off to football now. Bye.
Outstanding news on the counts!! Amazing how sometimes we DO know our kids and their reactions to treatment, we should all get honorary medical degrees. You go, Mom!
It's just awesome to hear that Scott's body continues to fight so hard. it's also awesome to hear that you're able to scare the bejeebers out of him so easily. Nothing like a little trauma in the dark to really cement that mother/son bond.
Lots of love coming at ya!
Anissa
www.hope4peyton.org
Good luck tomorrow!
xoxoxox
S.
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